What is the MSBase Registry?
An international online registry for Multiple Sclerosis researchers.
The MSBase Registry is a unique international collaboration dedicated to sharing, tracking and evaluating outcomes data in multiple sclerosis (MS) and other neuro-immunological diseases (NIDs).
The MSBase Foundation has collaborated with participating MS physicians and their healthcare teams to collate the largest organised repository of longitudinal, 'real-world' MS patient data. The Registry commenced in 2004 and has accumulated over 52,000 patient records from 33 participating countries.
The collaboration aims to better our understanding of MS and improve healthcare for those living with MS by answering epidemiological questions that can only be addressed by prospective assessments of many thousands of patient records. The MSBase simplifies the collection of epidemiological information by providing an electronic Data Entry System. The data entry system software is useful in clinical practice for patient tracking and record management, and is freely available to members, who in turn support the collaborative research initiative.
The MSBase Registry is owned and operated by the MSBase Foundation Ltd, a not-for-profit company registered in Australia. The Foundation is governed by a Global Board of Directors that advises and supports the work of the Registry. The MSBase Scientific Leadership Group (SLG) specifically advises the Foundation on the scientific direction of the Registry. The Operations Team are responsible for the maintenance and management of the Registry and are centralised in Melbourne, Australia.
The Registry is free to join and membership is available to all practicing neurologists and their healthcare teams.
The objectives, design, membership eligibility and registry procedures are all defined in a publicly available Observational Plan.