The MSBase Foundation
The MSBase Foundation Ltd is a not-for-profit charitable organisation incorporated as a company in Australia. The Foundation is governed by a Board of Directors who are responsible for the oversight of the charity. The Board also integrates and prioritises the scientific initiatives as determined by the Scientific Leadership Group (SLG).
The Board is led by the Chair, Prof Thomas Leist. A copy of the MSBase Foundation Constitution is available here.
In collaboration with participating neurologists, the MSBase Foundation has established a unique, web-based platform, The MSBase Registry, which is dedicated to sharing, tracking and evaluating outcomes data in Multiple Sclerosis and other Central Nervous System demyelinating diseases.
In particular, the MSBase Foundation aims to advance collaborative epidemiological and outcomes research by providing a freely accessible resource to combine, compare and analyse large datasets, for the benefit of people with Multiple Sclerosis.
Mission, vision and values
The MSBase Foundation's mission is to provide collaborative data collection tools, a research platform and research support enabling worldwide collaborative outcomes and epidemiologic research for the benefit of people with multiple sclerosis.
To be recognised as the global leader in supporting collaborative observational research studies of multiple sclerosis epidemiology and outcomes.
The following values drive the organisation’s culture and provide a framework for decisions.